Colorado boy 'stone'

Colorado boy ‘stone’

Colorado Boy Turning to Stone

Ten-year-old Jaiden Rogers suffers from a rare condition that is leaving parts of his skin turning to stone. When Jaiden was just 7-years-old, his parents noticed that he had painful patches on his skin. Since then, the patches have spread. He is only the 41st case ever reported to suffer from a condition like this.

Rogers’ mother, Natalie Rogers, said they are searching and hoping for a doctor or treatment that can help Jaiden get better. She said doctors are even using chemotherapy medications in an effort to slow the growth of the lesions.

“It started as small little patch and it spread all over,” Rogers told ABC News. “They’re trying to slow it down as much as it can, until we can find something.”

His parents have said that touching the patches feels like you are touching a hard surface. Some days the condition has affected Jaiden so badly that some days he has difficulty walking and needs a wheelchair to get around. The patches have spread to his hips, legs, and back. The official diagnosis from his doctors is called “stiff skin syndrome“. Currently doctors have no cure or a treatment to help this condition. However, Jaiden is on chemotherapy drugs which seemed to have at least stopped the spread of the condition to other parts of his body.

Jaiden undergoes physical therapy which helps to keep his joints and limbs limber so he can move. His parents plan on seeking further options for different types of treatment that may be available in Europe.

The family is trying to raise funds on the YouCaring website, but is mostly looking for help treating the disease and slowing its progression.

“Literally, it’s turning him to stone; he’ll be entombed in himself if we can’t find something,” Rogers said.

For the full article, click the link to check it out on The Daily Mail.

Stiff skin syndrome (also known as "Congenital fascial dystrophy" is a cutaneous condition characterized by ‘rock hard’ induration, thickening of the skin and subcutaneous tissues, limited joint mobility, and mild hypertrichosis in infancy or early childhood. Immunologic abnormalities or vascular hyperactivity are not present in patients.

Stiff skin syndrome (also known as “Congenital fascial dystrophy” is a cutaneous condition characterized by ‘rock hard’ induration, thickening of the skin and subcutaneous tissues, limited joint mobility, and mild hypertrichosis in infancy or early childhood. Immunologic abnormalities or vascular hyperactivity are not present in patients.