One of our twin boys had this same condition, retinoblastoma. We found out much the same way…by taking pictures and noticing the shiny glare. I didn’t even know such a condition existed in little children, apparently it usually and only happens in those under 5 years old.
Our son also had to have it surgically removed. His eye was 100 percent full of tumor. He now has a prosthetic too and you can hardly tell. We are so thankful for the technicians who make these wonderful prosthetics. They are miracle workers who make your child look and feel ‘normal’. The cancer had even begun travelling up the optic nerve. He had to have 6 rounds of chemo. Praise the Lord, he has been cancer free for almost 4 years now!!!! No re-occurence of cancer!!! We praise God for the miracle of catching it in time, much like this dear little one.
May God go with this family as they adjust to this, and may blessings be upon this dear little one.
I hope you all get nominated for a Make a Wish!!!! 🙂
Retinoblastoma is typically caught by accident, just like this family did. These things aren’t usually caught by an ophthalmologist or pediatrician b/c it’s rare and most MDs don’t think it’s necessary to check for. The reason behind that is unknown to me. Fortunately for this child is the cancer was caught early enough to not metastasize. The bad side is this kid lost sight to one eye and will need a prosthetic eye which will cause psychosocial issues. Good luck to them
A very rare disease in fact I had this same cancer at 9 mths of age. Great catch by my parents as well. Unfortunately only way to cure it is to remove the eye, when the tumor fills the eye you loose your vision anyways.but having this cancer is not a death sentence life goes on. You can live a normal life like other kids with help of prosthesis and now a days they have coral implants that help with movement. I’m proud to say that I’m 32 with 3 beautiful healthy boys, able to drive and even have a career as a registered nurse without restrictions. My prayers to your family for speedy recovery. Only 1 suggestion that was given to me was to wear glasses for protection to the good eye…never know if you can get hit or poked by accident
One of our twin boys had this same condition, retinoblastoma. We found out much the same way…by taking pictures and noticing the shiny glare. I didn’t even know such a condition existed in little children, apparently it usually and only happens in those under 5 years old.
Our son also had to have it surgically removed. His eye was 100 percent full of tumor. He now has a prosthetic too and you can hardly tell. We are so thankful for the technicians who make these wonderful prosthetics. They are miracle workers who make your child look and feel ‘normal’. The cancer had even begun travelling up the optic nerve. He had to have 6 rounds of chemo. Praise the Lord, he has been cancer free for almost 4 years now!!!! No re-occurence of cancer!!! We praise God for the miracle of catching it in time, much like this dear little one.
May God go with this family as they adjust to this, and may blessings be upon this dear little one.
I hope you all get nominated for a Make a Wish!!!! 🙂
Retinoblastoma is typically caught by accident, just like this family did. These things aren’t usually caught by an ophthalmologist or pediatrician b/c it’s rare and most MDs don’t think it’s necessary to check for. The reason behind that is unknown to me. Fortunately for this child is the cancer was caught early enough to not metastasize. The bad side is this kid lost sight to one eye and will need a prosthetic eye which will cause psychosocial issues. Good luck to them
A very rare disease in fact I had this same cancer at 9 mths of age. Great catch by my parents as well. Unfortunately only way to cure it is to remove the eye, when the tumor fills the eye you loose your vision anyways.but having this cancer is not a death sentence life goes on. You can live a normal life like other kids with help of prosthesis and now a days they have coral implants that help with movement. I’m proud to say that I’m 32 with 3 beautiful healthy boys, able to drive and even have a career as a registered nurse without restrictions. My prayers to your family for speedy recovery. Only 1 suggestion that was given to me was to wear glasses for protection to the good eye…never know if you can get hit or poked by accident